"Can you come with me, Mom?" - Mother recalls her son's heartbreaking last words

Dublin mother Maria Fynes has relived her heartbreaking final moments with her son before losing him to a rare and excruciating skin condition that left him 'left in agony

Aaron Fynes was among the first children in Ireland to be diagnosed with painful epidermolysis bullosa (epidermolysis bullosa).

Image: Dublin Live

A mother whose son died of a painful genetic skin condition recalled her heartbreaking final moments as she pleaded for more support for other families with children with the same condition.

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Maria Fynes, from Dublin, lost her eldest son Aaron in 2001 to a condition called epidermolysis bullosa (EB), which causes fragile, blistered skin.

Aaron was one of the first Irish children to be diagnosed with this rare disease and sadly lost his battle aged just 16.

But despite more than a decade since his death, Maria still vividly remembers her son's final moments.

She told DublinLive: "The last few days have been terrible as her eyesight has deteriorated and the painkillers weren't having the same effect."

Maria Fynes of Ballyboughal, North County Dublin, and her husband Val (

Picture:

Dublin Live)

Mrs. Fynes also recalled a devastating conversation she had with Aaron while she was watching beside his bed in the hospital.

She said, "I asked her, 'If you could go somewhere where there was no pain, would you go?'

"He turned to me and said, 'Can you come with me, Mom?'.

"I would have given anything to go with him, but I said, 'Not my son yet, but I will one day. Your nanny and your grandfather are there, so they will take care of you.

"And he was like, 'Okay, mom, I'll go.'

Aaron had this condition since birth and doctors did not think he would live long after birth with no skin on his right leg and right ankle and also had large fluid filled blisters on his chest.

At first he was fed through a tube after the skin on his tongue and the roof of his mouth was ripped off...